We have had a whirlwind of a day! John Andrew was diagnosed with atypical TB today. It is an extremely rare infection in healthy children. He has a lump on the left side of his face near the parotid gland and the facial nerve. This was our first and only indication something might be wrong. After seeing a couple of different doctors here in Hastings, a PPD to confirm TB, and a chest X-Ray to rule out typical TB infection, we have the diagnosis of Atypical TB. Atypical TB is NOT CONTAGIOUS! We have been told that he probably got it from eating dirt. Most children are just fine eating all the dirt they want, but every now and then one child is not...If you would like to thank us for biting the statistical bullet, thank you cards can be sent to our home address ;)
The normal treatment for Atypical TB is harsh antibiotics combined with surgical removal of the nodules and affected lymph nodes. Many cases of atypical TB are resistant even to the strongest antibiotics but we are hoping they will work for John Andrew. If they do not and surgery is required, there is a risk of facial paralysis because of the location of the nodule. He also has several affected lymph nodes that we will be watching.
We have been referred to a pediatric ENT and an Infectious Disease Specialist in Omaha. We will make our first trip there tomorrow and hopefully get some more information.
We are all trusting in our Savior! John Andrew is not in any pain at all and is loving all the attention. I am assuming after tomorrow he may be “over” all the doctors. Pray that he will not be afraid and that Chad and I will know how to comfort him. As for Chad and me, our hearts are at peace. We have SO much to be thankful for and we hope to share many blessings with you when we get a chance! God is guiding us! We are sad for John Andrew to have to go through this process, but we believe his Creator loves him more than we do. Pray for wisdom for us and the doctors. We will keep you updated! Finally here is a song that Chad would want to share with you all that expresses our hearts’ cry and faith in our God.
Whate'er My God Ordains Is Right
Whate’er my God ordains is right,
Holy His will abideth.
I will be still whate’er He does,
And follow where He guideth.
He is my God,
Though dark my road.
He holds me that I shall not fall
Wherefore to Him I leave it all
Holy His will abideth.
I will be still whate’er He does,
And follow where He guideth.
He is my God,
Though dark my road.
He holds me that I shall not fall
Wherefore to Him I leave it all
Whate’er my God ordains is right,
He never will deceive me
He leads me by the proper path,
I know He will not leave me
I take, content,
What He hath sent
His hand can turn my griefs away
And patiently I wait His day
He never will deceive me
He leads me by the proper path,
I know He will not leave me
I take, content,
What He hath sent
His hand can turn my griefs away
And patiently I wait His day
Whate’er my God ordains is right,
Though now this cup in drinking
May bitter seem to my faint heart,
I take it all unshrinking
My God is true,
Each morn anew
Sweet comfort yet shall fill my heart
And pain and sorrow shall depart
Though now this cup in drinking
May bitter seem to my faint heart,
I take it all unshrinking
My God is true,
Each morn anew
Sweet comfort yet shall fill my heart
And pain and sorrow shall depart
Whate’er my God ordains is right,
Here shall my stand be taken
Though sorrow, need, or death be mine,
Yet I am not forsaken
My Father’s care
Is round me there
He holds me that I shall not fall
And so to Him I leave it all
Here shall my stand be taken
Though sorrow, need, or death be mine,
Yet I am not forsaken
My Father’s care
Is round me there
He holds me that I shall not fall
And so to Him I leave it all

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